No one will ever realise how much this little girl means to me. She has been through so much more than most in her short 8 months but you would never be able to tell!! She’s such a happy baby and makes my life 1000 times better than it could have ever been without her. She’s so strong and because of that has made me into an even stronger person. Things won’t be easy for lilah growing up but I only hope I can help her love the life she does lead! #marfansyndrome #allergies #marfantrust #mywholelife

Been a long time since I posted something personal but I need too talk about this.

Today I finally got a diagnosis off marfan syndrome for my 6 month old daughter and I was also told her enlarged auorta is bigger than it was 8 weeks ago and that the cardiologist had not seen this so severe in someone so small, surgery is not an option because she is still growing a lot every day so medication it is… I pray my little girl has guardian angels and that family members are watching over her she’s my world

“Motherhood is about raising – and celebrating – the child you have, not the child you thought you would have. It’s about understanding that s/he is exactly the person s/he is supposed to be. And that, if you’re lucky, s/he just might be the teacher who turns you into the person you are supposed to be.” Joan Ryan

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