Been a long time since I posted something personal but I need too talk about this.

Today I finally got a diagnosis off marfan syndrome for my 6 month old daughter and I was also told her enlarged auorta is bigger than it was 8 weeks ago and that the cardiologist had not seen this so severe in someone so small, surgery is not an option because she is still growing a lot every day so medication it is… I pray my little girl has guardian angels and that family members are watching over her she’s my world

“Motherhood is about raising – and celebrating – the child you have, not the child you thought you would have. It’s about understanding that s/he is exactly the person s/he is supposed to be. And that, if you’re lucky, s/he just might be the teacher who turns you into the person you are supposed to be.” Joan Ryan

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